Doctors from Spain attended the International American Thoracic Society meeting, held in Washington DC, May 19 – 24th and presented an abstract case report of a single lung transplant in a 49-year-old male with Hermansky-Pudlak Syndrome. The transplant was conducted a year and a half ago, and the patient is doing well. The HPS Network was able to meet with these doctors, and they reported having a second patient with HPS and mild pulmonary fibrosis who is 72 years old. This patient will not be a candidate for lung transplant. The physicians seemed very willing to share information with these patients about the HPS Network and encourage them to contact us. Hopefully, they will join our community soon.
Knowledge of these cases can be so helpful in furthering HPS research and offering hope to all those affected by HPS. It is further evidence to support why it is so important for those with HPS to register with the HPS Network, no matter where in the world they live.