Puerto Rican Senate to hold hearing on Bill 1127

The Puerto Rican Senate will hold a hearing to consider Bill 1127 that would make changes in coverage for those with Hermansky-Pudlak Syndrome (HPS) and other types of albinism that are insured by Reforma, the island’s public health care coverage. Advocates for HPS on the island are asking supporters to attend the hearing on Feb. 12 at 9:00 am at the Annex of the Capitol. Hilda Cardona and Dr. Enid Rivera have advocated for this legislation that would, among other things: Extend catastrophic...

Michael J. McGowan Leadership Scholarship application open

The National Organization for Albinism and Hypopigmentation (NOAH) announces that the application period for the Michael J. McGowan Leadership Scholarship is now open. NOAH awards one scholarship annually to a NOAH member who: has albinism, resides in the U.S. or Canada, and is enrolled in an undergraduate program at a U.S. or Canadian institution of higher education. The intent is to enhance educational opportunities for students with albinism while celebrating dedication and outstanding...