November 25, 2020 | Hermansky-Pudlak Syndrome Network

Puerto Rican Senate to hold hearing on Bill 1127

Feb 4, 2019

The Puerto Rican Senate will hold a hearing to consider Bill 1127 that would make changes in coverage for those with Hermansky-Pudlak Syndrome (HPS) and other types of albinism that are insured by Reforma, the island’s public health care coverage. Advocates for HPS on...

Michael J. McGowan Leadership Scholarship application open

Feb 4, 2019

The National Organization for Albinism and Hypopigmentation (NOAH) announces that the application period for the Michael J. McGowan Leadership Scholarship is now open. NOAH awards one scholarship annually to a NOAH member who: has albinism, resides in the U.S. or...

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