The Peer Reviewed Medical Research Program (PRMRP) is accepting letters of intent for research grants. Hermansky Pudlak Syndrome is one of the diseases eligible to be considered for funding. This year, the program is accepting transitional and clinical research...
Newsroom - Articles
HPS Network joins sponsors of the Gordon Research Conference
HPS Network joins sponsors of the Gordon Research Conference (GRC) Promoting Health Across the Lifespan in Developing and Aging Lungs The HPS Network will be one of the sponsors for the upcoming Promoting Health Across the Lifespan in Developing and Aging Lungs, to be...
HPS Network supports virtual pulmonary rehabilitation bill
HPS Network supports virtual pulmonary rehabilitation bill Pulmonary rehabilitation is a critical medical service to improve the quality of life for many people living with chronic lung disease. Medicare covers pulmonary rehabilitation delivered in certain settings,...
Urge Congress to protect crucial funding for NIH and FDA
Urge Congress to protect crucial funding for NIH and FDA The Fiscal Year 2026 (FY26) appropriations process continues! Congress has important decisions to make in the upcoming months regarding the fiscal year 2026 funding for the National Institutes of Health (NIH)...
Protect Medicaid for Rare Disease Patients
Protect Medicaid for Rare Disease Patients In the coming months, Congress could vote on legislation that would cut Medicaid coverage and funding from millions of rare disease patients. We need your help to tell members of Congress to vote NO on cutting Medicaid...
Ad Hoc Group for Medical Research welcomes Congress
The HPS Network joined the Ad Hoc Group for Medical Research in welcoming members of the 119th Congress As a new congressional session begins, the letter introduces the Ad Hoc Group and emphasizes the critical importance of federal investment in NIH to improve the...
Community Champions for Disability Health Challenge finalist
HPS Network finalist in Community Champions for Disability Health Challenge The HPS Network is honored to be one of eight first-round finalists in the National Institutes of Health’s Community Champions for Disability Health Challenge. The prizes encourage...
Dr. Samuel Seward Joins the HPS Network as Chief Medical Officer
PRESS RELEASE Dr. Samuel Seward Joins the HPS Network as Chief Medical Officer Oyster Bay, N.Y. – Dr. Samuel Seward has joined the HPS Network as Chief Medical Officer. Dr. Seward has a long history of serving the HPS community. He was a founding member of the HPS...
HPS Included in 2025 DoD Research Program
HPS Included in 2025 DoD Research Program Oyster Bay, NY – In August, the Senate Appropriations Committee unanimously approved the Defense Appropriations bill in a 28-0 vote. For the first time, the committee report accompanying this bill includes...
Supplemental Oxygen Access Reform (SOAR) Act
HPS Network supports SOAR Act (S. 3821, H.R. 7829) The HPS Network joins with a coalition of other patient advocacy groups and interested professionals to support the Supplemental Oxygen Access Reform Act or SOAR Act (S. 3821, H.R. 7821). The legislation would...