HPS Network outreaches at 2019 American Thoracic Society International Meeting

A team from the HPS Network attended the American Thoracic Society (ATS) Annual Meeting, held May 17 – 22 in Dallas. The group was able to interact with more than 14,000 lung physicians, researchers, and representatives from pharmaceutical companies, at the HPS Network booth in the exhibit hall, and by attending some of the thousands of lecture sessions, scientific poster sessions and special events. Donna Appell, Founder and Executive Director of the HPS Network, serves on the ATS Public...

Funding the HPS Conference Focus Group

Save the Date! Aug 14, 2019 at 8:00 pm ET We’ve come a long way. Instead of looking for researchers and hoping they will be interested in HPS, we have some of the world’s leading minds in gene therapy and stem cell research working on HPS. We have promising candidate drugs that will hopefully soon advance to clinical trials. Now, we need to fund the conference. The conference isn’t just informative or fun. It’s the place where our researchers come together to compare notes and find ways to...

Building Your Village: HPS Network Webinar

Save the Date! Aug, 13, 2019 at 8:00 pm ET There are lots of times when those of us impacted by HPS, whether we are people with HPS or caregivers, need our community support systems. They say it takes a village, and we need our villages to help us along the way. This webinar will provide information about community resources to look for as well as tips for building your own village, or even major metropolitan area, to better navigate living and thriving with HPS.  Come to listen, or share your...

HPS Network partners with the ATS Foundation to fund another cycle of HPS research grants

Thanks to the hard work of our members and donors, the HPS Network will be able to partner again with the American Thoracic Society (ATS) Foundation to fund another HPS research grant. The $40,000 per year runs for two years and is funded half by the HPS Network, and half by the ATS Foundation. The ATS Foundation also gives us valuable support and know-how to collect and manage grant proposals and have them evaluated by scientists to select the awardee. Historically, these grants have been a...

Entries now open for the Rare Artist Awards

The Rare Artist Contest, sponsored by the EveryLife Foundation for Rare Diseases, is now taking submissions for its annual art contest featuring the work of artists with rare diseases, or their family, caregivers, friends, researchers or medical personnel. There are a variety of categories for kids as well as adults in a wide range of traditional or digital media. Winners receive cash prizes as well as are invited to speak on Capitol Hill during Rare Disease Week. To learn more, go to:...