Did you know that HPS members Casey Greer and Cassandra Mendez Ocasio have a podcast? The girls tackle what life is like living with a disability, and doing it with style. Some of the topics they have covered is White Can Safety, Dancing With a Visual Impairment, and...
Newsroom - Articles
HPS is a continued Platinum Member of NORD for 2021!
The HPS Network is proud to announce that we have continued our certification as a platinum member of NORD. NORD maintains high ethical standards for patient advocacy groups in order to make sure that we are doing the very best for the populations we serve. Being a...
We need you! Research opportunity! Participate in the NIH Symptom Scale Study, for more information email info@hpsnetwork.org
WE NEED YOUR HELP! Our mission at the Network is to find a cure for HPS. This is the driving force behind all that we do. A cure is not possible without research and for that we need you! We are reaching out to see if you would be interested in taking part in...
NIH Symptom Scale Study
Our mission at the Network is to find a cure for HPS. This is the driving force behind all that we do. A cure is not possible without research and for that we need you!WE NEED YOUR HELP! Our mission at the Network is to find a cure for HPS. This is the driving force...
Thanks for making our Annual HPS Christmas Concert Jingles and Jazz 2020 a great success!
Please Click Here to register for the Annual HPS Christmas Concert Jingles and Jazz 2020
Annual HPS Christmas Concert Jingles and Jazz 2020December 12, 2020 at 7 pm Please click this link to register This year, our annual Jingles and Jazz Christmas Concert will be going virtual. Enjoy an evening of songs and cheer to usher in the Holiday season....
Giving Tuesday
Giving Tuesday Zoom talk. Please join us and view our latest Zoom talk in Youtube for more information. Click here to see a Youtube video of the Zoom talk.
Giving Tuesday 2020
Giving Tuesday 2020 is fast approaching! The HPS Network will be participating in Giving Tuesday this December 1, 2020. We understand these are challenging times, but the work of finding a cure does not stop! This year, we have a new software to make fundraising...
Please Visit The Survey Tab to Complete Important Research Surveys! Thank you!
Recall of nasal DDAVP
Ferring US issued a voluntary recall of DDAVP nasal spray 10 mcg/0.1 mL, Desmopressin Acetate Nasal Spray 10 mcg/0.1 mL, STIMATE Nasal Spray 1.5 mg/mL because of superpotency. Superpotency can cause low sodium levels that could result in seizures, coma or death. If...