NEWSROOM
Kevin O’Brien to present the basics of living with HPS at HPS Conference
Kevin O’Brien, Associate Investigator for the HPS protocols at the National Institutes of Health, will present “HPS 101” at the 24th Annual HPS Network Conference, to be held March 10 – 12, at the Long Island Marriott in Uniondale, NY. Thjs is a perfect session for...
Dr. Merideth to present on women’s health issues related to Hermansky-Pudlak Syndrome at the 2017 HPS Network Conference
Dr. Melissa Merideth will meet with those interested in learning more about how women’s health issues are impacted by Hermansky-Pudlak Syndrome at the 24th Annual HPS Network Conference, to be held March 10 – 12, at the Long Island Marriott in Uniondale, N.Y. Her...
Dr. Gahl to present an overview of HPS research at the 24th Annual HPS Network Conference
Dr. William Gahl will present an overview and update of research on Hermansky-Pudlak Syndrome at the 24th Annual HPS Network Conference, to be held March 10 – 12 at the Long Island Marriott in Uniondale, NY. Dr. Gahl’s presentation will be the morning of March 12th....
Dr. Cohen will present about the GI complications of Hermansky-Pudlak Syndrome at the HPS Network Conference
Dr. Louis Cohen will give a presentation on the gastrointestinal complications of Hermansky-Pudlak Syndrome (HPS) at the 24th Annual HPS Network Conference on March 12, 2017, at the Long Island Marriott in Uniondale, NY. Dr. Cohen is an Assistant Professor and...
Respiratory therapists to teach harmonica therapy at HPS Network Conference
Respiratory therapists at Holy Name Medical Center are using harmonicas to help patients with chronic lung diseases breathe better. They will attend the HPS Network Conference on Saturday, March 11th, and offer a short course on how to use playing the harmonica to...
Mother’s Workshop planned for this year’s HPS Conference
Mothers with children that have Hermansky-Pudlak Syndrome will be able to network with each other and learn how to handle the common issues that come up raising a child with HPS at the 24th Annual HPS Network Conference, to be held March 10 – 12, at the Long Island...
Fun activities planned for kids of all ages at the HPS Conference Kids Camp!
Kids attending Kids Camp at the HPS Conference, to be held at the Long Island Marriott in Uniondale, NY March 10 – 12 will have a plethora of fun activities to keep them busy while their parents attend conference sessions. The HPS Kids Camp includes children...
Research on the GI issues of HPS to be discussed at 24th Annual Conference
A number of researchers working on the gastrointestinal issues of Hermansky-Pudlak Syndrome will join us at this year’s HPS Conference to discuss current and planned research projects. If approval is secured in time, some samples may be collected at the...
Dr. Mueller to present about gene therapy at 24th Annual HPS Conference
Dr. Christian Mueller, Associate Professor in the Department of Pediatrics and in the Horae Gene Therapy Center at the University of Massachusetts Medical School will give a presentation on the basics of gene therapy at the 24th Annual HPS Network Conference, March 12...
Dr. Samuel Seward to present basic standard of care at the 24th Annual HPS Network Conference
Dr. Samuel Seward, board member of the HPS Network the Site Chair, Department of Medicine, at Mount Sinai St. Luke’s and West Hospitals, will present an overview of the basic standard of care for people affected by Hermansky-Pudlak Syndrome at the 24th Annual HPS...
Gitman to present about maintaining kidney health at the 24th Annual HPS Network Conference
Dr. Michael Gitman, a kidney specialist, will give a presentation about maintaining kidney health on Science Sunday at the 24th Annual HPS Network Conference, March 12th, at the Long Island Marriott Conference Center in Uniondale, NY. Although a relationship between...
Dr. Sharda to present about the bleeding challenges of Hermansky-Pudlak Syndrome at the 24th Annual HPS Conference
Dr. Anish Sharda, a researcher working on the bleeding problems associated with Hermansky-Pudlak Syndrome, will be a speaker on Science Sunday, March 12 at the 24th Annual HPS Network Conference at the Long Island Marriott in Uniondale, NY. Dr. Sharda is an Instructor...
Treat your pet and raise money for HPS
If you’re a pet owner, you know that pet medications can easily be as expensive as medications for people. The HPS Network has partnered with USAPetMeds to offer drug discount cards for pet medications. For each purchase made using our policy numbers, the HPS Network...
Seward gives presentation about HPS at Grand Rounds
Dr. Samuel Seward Jr., a board member of the HPS Network, gave a grand rounds presentation in September at Mount Sinai West. The presentation was also telecast to an audience at Mount Sinai St. Lukes. He is the new Chair of the Department of Medicine at Mount Sinai...
HPS Network attends NOAH Conference
The HPS Network attended the national conference of the National Association for Albinism and Hypopigmentation (NOAH) in Pittsburgh in July. Donna Appell gave a presentation about Hermansky-Pudlak Syndrome, as well as helped out at a number of other sessions for...
HPS Network News Summer 2015
Summer Newsletter 2015 Despite flight delays and cancellations caused by bad weather, a record number of people with HPS and their families, as well as HPS researchers, gathered in Uniondale, New York for the 22nd annual HPS Network Conference. In all, more than 280...
24th Annual HPS Conference
24th Annual HPS Conference About this Event When: Friday, March 10, 2017 - 4:00pm - Sunday, March 12, 2017 - 4:00pm Where: Long Island Marriott Hotel & Conference Center101 James Doolittle BoulevardUniondale, New York 11553 USAPhone: 1-516-794-3800Fax:...